Bobby’s story

When Bobby was born in 2013, his parents, Danny and Kelly, were given news no family expects. He had Biliary Atresia, a rare condition affecting the bile ducts. From the very beginning, they were told he would need major surgery to give him the best possible chance.

At just a few weeks old, Bobby underwent the Kasai procedure. It was an overwhelming time filled with fear, uncertainty and long days on the hospital ward. Through it all, one thing made a difference.

“Camberwell House became our safe haven,” Kelly remembers. “It meant we could stay close to Bobby every day. We could rest, eat, and just take a breath when we needed it most.”

As the years went on, hospital became a familiar place. Between 2013 and 2024, Bobby faced repeated admissions as complications continued. For Danny and Kelly, life was shaped by waiting rooms, difficult conversations and the constant unknown.

“There were so many moments when we didn’t know what the next day would bring,” says Kelly. “It was exhausting and frightening, but having somewhere we could stay together helped us get through it.”

In 2024, the call they had been waiting for finally came. Bobby was going to receive a liver transplant. It was a moment filled with hope but also fear of what lay ahead. Once again, Camberwell House was there to support them.

“I can’t imagine going through that time without the House,” Kelly says. “The staff were so kind and always asked about Bobby. It made such a difference to feel cared for as well.”

Despite the transplant, Bobby’s recovery was not what anyone had hoped for. He spent most of the following year in hospital, growing weaker as the family continued to hold on to hope.

Then, in 2025, Bobby was given another chance. He received a second liver transplant at King’s College Hospital.

Once again, the whole family returned to Camberwell House. This time, being together felt more important than ever.

“I honestly don’t know what we would have done without it,” Kelly says. “Being able to have our other son, Archie, stay with us meant everything. We could still be a family, even in the middle of everything we were going through.”

As Bobby slowly began to recover, small moments became the most meaningful. When he was well enough to visit the House on a medical day pass, being reunited with his brother lifted his spirits in a way nothing else could.

“One memory I’ll never forget is the Easter Egg Hunt at the House,” Kelly recalls. “Seeing both boys together, laughing and taking part, it made me cry with joy. In that moment, everything felt hopeful again.”

Today, those moments of togetherness mean everything to Bobby’s family.

“Thank you so much for having us,” Kelly says. “You are all amazing.”

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